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Online activities unfolding| Winter 21

Hello,

We are pleased to present the programming of activities and services that will be offered by Parkinson Montréal-Laval in winter 2021.

We continue to enrich the online service offering with the opening of a new support group for people living with Parkinson’s disease, which will meet one Tuesday per month, but also with meditation and relaxation workshops which will be given weekly, every Monday.

Winter also marks the birth of a pilot project designed to match peers living with Parkinson’s disease. The twinning project aims to connect these people who want to share their experience, learn from each other or develop new ideas for living better with the disease. Everyone can participate, regardless of the number of years of diagnosis.

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Be a part of the new Twinning project!

Hello,

Do you live with Parkinson’s disease and want to talk to someone who is experiencing the same realities as you?

Want to find support from someone who has lived with Parkinson’s disease for several years?

Do you want to share your strategies for taking care of your health and want to do activities with someone who lives in the same neighborhood as you?

The Twinning Project is for you!

The Twinning Project is a new service offered by Parkinson Montréal-Laval. It aims to connect people living with Parkinson’s disease who want to share their experiences, learn from each other or develop new ideas for living better with the disease. Anyone with the disease can participate, regardless of the number of years of diagnosis.

Desired frequency of meetings

Three meetings and / or calls from January to March 2021

PML support

Those registered for this pilot project will benefit from support from our advisor Annie Cusson and from a toolbox to promote discussion and mutual aid.

How to proceed if this project interests you?

1st step: You register or request information by emailing servicespml@parkinsonquebec.ca or by calling 514 868-0597

2nd step: You fill out a questionnaire so that PML identifies your profile and your needs

3rd step: PML proceeds to the match

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6 ideas to maintain social link with your loved one during holidays season

Hello,

Following the government’s suggestions to find ideas to maintain and promote social links with our isolated relatives during holidays, we would like to share some of our suggestions with you. Of course, they are not exhaustive and we invite you to give us yours!

If you can visit him:

– Bring him a holiday cake to eat together. Sugar pie, pouding chomeur, …

Cook with your loved one! You could even cook some holiday meals for him to reheat later.

Brighten up his living space by participating in the festive decoration of his interior. Light garlands, candles, Christmas tree, …

If you cannot visit him:

Play games together! By calling with video conference, you can play board games like checkers and chess

Send him Christmas cards with letters to stimulate his reading.

Eat together, by interposed screens! And you could also place his cutlery on your decorated table.

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Resumption of meditation and relaxation workshops

Hello,

In Winter 2021, Parkinson Montréal-Laval invites you to find serenity by participating to Meditate, relax and move gently. These free workshops will help you experience different techniques of meditation and relaxation. It is both for people living with Parkinson’s disease and their caregivers. All levels are accepted: no experience required!


One group offered by videoconference on Zoom*:

• Every Monday from 1.30 to 3 pm, from January 11 to March 15

Free activity led by Annie Cusson in French. Possibility of joining one or more meetings.

Register : servicespml@parkinsonquebec.ca | 514 868-0597.

* Zoom links will be sent after registration.

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Fruit cake campaign : holidays are coming!

Hello,

Make a holiday gesture that will bear fruit!

In its pretty gift box, this cake is entirely made in Montreal, with quality ingredients. All profits will be used to support services for people living with Parkinson’s disease and their caregivers.

This is a great gift idea for family, friends and colleagues!

Weight: 900 grams

$ 200 \ case of 10 cakes (taxes and delivery included)

$ 20 \ each

Order by calling Janie Guénette at 514-868-0597.

All profits from this delicious holiday campaign will go towards supporting people living with Parkinson’s and their caregivers.

Thank you in advance for your wonderful support!

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Our team is growing!

Hello,

We are pleased to introduce Annie Cusson, who has joined our team as an advisor. She has helped us last summer for a short term mission and she will now be in charge of developing support services for people living with Parkinson’s disease. News will follow in the upcoming weeks.

Annie Cusson has a background in social work. She has worked in various community organizations and educational establishments as a facilitator, trainer and teacher. She has developed a particular interest in supporting people with chronic illnesses. This interest has led her to lead self-management support groups for people with chronic diseases and anxiety management programs.

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Individual psychosocial support service for caregivers of people living with Parkinson’s disease

Hello,

Are you currently accompanying a loved one living with Parkinson’s disease? During the pandemic, being a caregiver can create additional challenges with which our qualified counselors can help.

In individual and personalized meetings, we offer:

– Sensitive and caring listening

– Informations and resources

– Adaptation strategies

– Help to prevent or face exhaustion

Our services are free and completely confidential.

Contact us for any questions or to make an appointment : 514 868-0597 or by email : supportpmllaval@parkinsonquebec.ca

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How to communicate with a mask for a person with Parkison’s disease ?

For a person with Parkinson’s disease, communicating while wearing a mask can provide extra challenges. Here are a few tips that may improve communication. Thanks to LSVT Global for the ressource.

Download a copy of this guide.

  • Increase vocal loudness (but not yelling or shouting)
  • Speak slower and in shorter phrases
  • Look directly at your communication partner to optimize hearing and intelligibility
  • Tell your listener what topic you are going to be talking about
  • Ask yes/no clarifying questions as needed
  • Reduce background noise
  • Use personal amplification devices
  • Use a clear mask where the mouth is visible
  • Gesture to convey your message  
  • Consider alternative ways to communicate (written, text, text to speech)

Additional considerations for people with Parkinson Disease

  • Speak with increased effort. Use the voice and effort you would use to be heard in background noise, even when in a quiet environment.
  • Check-in with your speech therapist for specific recommendations for you.
  • Speak in shorter sentences, focusing on a good vocal effort.
  • Hydrating is harder when wearing a mask. Ensure you are staying hydrated throughout your day when not masked.

For additional information and links to helpful resources: https://blog.lsvtglobal.com/navigating-masks-and-parkinsons-disease-keeping-yourself-heard/

Additional considerations for people with PD : www.lsvtglobal.com | info@lsvtglobal.com | 888-438-5788

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Instructions to prevent seniors deconditioning in the context of pandemic





Following the second wave of COVID-19, Quebec government has updated its instructions in order to prevent seniors from deconditioning due to an extended lockdown.

The directives are primarily intended for those responsible in living environments and for people working with the elderly clientele in these settings as well as for home services, but are also applicable in other settings, such as buffer zones.

You can read all of the instructions here (only in French).

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Second wave of COVID-19: advices for people living with Parkinson’s disease and their caregivers

Hello,

In this uncertain pandemic period, this page shares with you the necessary recommendations if a person with Parkinson’s or their caregiver contracts COVID-19. Here is a list of useful measures, which will allow the best possible protection of vulnerable people and those around them:

  • First of all, if you or one of your relatives contracts COVID-19, the first step would be to contact a social worker or a member of the team at your CLSC to find out what additional services you could possibly have. For example, ask if help could be added for getting up and bedtime for a two-week period?
  • At the same time, it may be useful to check up on your network if one or more people would agree to take over in the case where the caregiver also falls ill. These people should be well informed about the specific care, medications, the times they take them, etc.
  • It would be good to create a record of informations about the person’s health, family history and medication list, as well as few immediate family phone numbers. It may be useful to prepare a document with the progress of health to give to the medical staff if necessary.
  • In the case where you or the person you are taking care of has symptoms and a test has been taken, it is important to stay isolated in a room while waiting for the result. In order to prepare for such a situation of isolation, the ideal is to prepare a medical box containing a thermometer, painkillers, gloves, masks, a glass, disinfectant, a laundry basket with a garbage bag inside, so you can collect everything with your gloves. It is important to wash all laundry in hot water.
  • Ask regularly the person if everything is going well and check the progress of their health condition: check their temperature, if they have breathing difficulties, etc.
  • Do the grocery / pharmacy online and / or ask for grocery to be delivered in front of your door and wash everything.

You can complete this COVID-19 Symptom Self-Assessment if you think you or the person you are taking care of has symptoms : https://www.quebec.ca/en/health/health-issues/a-z/2019-coronavirus/covid-19-symptom-self-assessment-tool/

If you think you have signs of the COVID-19 or the person you are taking care of has symptoms, call 1-877-644-4545 to be directed to the right resource.

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