Caregivers

No one is really prepared to be a caregiver.

You may feel overwhelmed with your new responsibilities. You know that there is no cure for Parkinson’s and that the person with Parkinson’s will need even more help as the disease progresses. You know your lives will never be the same.

How can I help? Where do I start? 

The first step is to discuss and agree with the person with Parkinson’s on the role you will play. The person with Parkinson’s will make the decisions, but you want to be there—to offer physical and emotional support when it’s needed. You need to talk about how your involvement can change as Parkinson’s evolves.

Then form a partnership with the person with Parkinson’s, health care team, family members and friends. Each has a contribution to make and a role to play in meeting the challenges of Parkinson’s. The more information you and the person with Parkinson’s have, the better equipped you will be to cope with day-to-day obstacles. Listen to the doctor’s advice. Review what he or she recommends. Talk about available treatment options. Learn how the symptoms of Parkinson’s can be managed.

Get up-to-date, reliable information by contacting your doctor, calling the information line or visiting this website.

How can I take care of myself? 

Contact us to determine what kind of support groups are available in your area for you and the person with Parkinson’s. These are a good opportunity to listen, learn and share experiences. Know your limitations.

Parkinson’s is progressive so it may be increasingly difficult to care for a person with Parkinson’s by yourself. Look into home care, day programs or help from your family members. Every caregiver needs “time out” on a regular basis. Take a break and see friends.

Ask for and accept support. Make a list of tasks others can do. People want to help—include them in the caregiving plans. Find someone you trust when you’re feeling low or need to talk about some of your feelings. Get help when you are feeling stressed. And, remember, you are not alone!

Source : Parkison Québec

Services

Do you know someone who currently supports a loved one living with Parkinson’s disease? Taking on the role of caregiver creates many challenges with which our qualified counselors can help. Services are free and completely confidential. Contact us for any questions or to make an appointment. We offer you: caring listening, information and resources, coping strategies, help to prevent or cope with burnout, coffee meetings, support groups and conferences. 

What do we offer ? 

Visit our resources section for references on respite and other services.

Support groups

Our support groups for caregivers are currently held by videoconference once a month. They are facilitated by our qualified counsellors and are free of charge to all. The objectives of the groups are to :

  • Meet new people
  • Share your experiences
  • See the positive elements of your situation
  • Receive support and comfort
  • Better understand your emotions and find ways to deal with them in a constructive way
  • Get specific information on various aspects of Parkinson’s disease

En attendant les groupes physiques à venir, inscrivez-vous à nos groupes virtuels !

Individual psychosocial support

Do you need a supportive listener? Are you looking for resources or information? Are you looking for ways to refocus and find balance? Our advisors are here to help you.

Individual psychosocial support allows us to create a plan that is adapted and personalized to each person, but also to find coping strategies and help to prevent or face burnout. 

Make an appointment with one of our caregiver advisors now at 514-868-0597 or by email at montreal-laval@parkinsonquebec.ca.

Available by videoconference or by phone.