How can I help?
Where do I start?
The first step is to discuss and agree with the person with Parkinson’s on the role you will play. The person with Parkinson’s will make the decisions, but you want to be there, in order to offer physical and emotional support when it’s needed. You also might want to talk about how your involvement as a caregiver can change as Parkinson’s evolves.
We encourage you to form a partnership with the person with Parkinson’s, the health care team, family members and friends. Each has a contribution to make and a role to play in meeting the challenges of Parkinson’s. The more information you and the person with Parkinson’s can gather, the better equipped you will be to cope with day-to-day obstacles. Listen to the doctor’s advice and review what he or she recommends. Talk about available treatment options and learn how the symptoms of Parkinson’s can be managed.
Get up-to-date, reliable information by contacting your doctor, calling the information line or visiting this website.
Taking care of myself as a caregiver, is it still possible ?
Even if the reality of becoming a caregiver can shake your foundations in terms of self care, yes, it is possible to stay kind and present to yourself. And not only is it possible, it will be necessary to keep your wellbeing in mind in order to guarantee a durable and efficient presence all along your caregiving journey.
We encourage you to contact us to learn all the ressources available in your area for you and the person you are assisting. If it is available for you, we strongly recommend you to join one of our support groups. These are a good opportunity to listen, learn and share experiences.
Parkinson is progressive so it may become increasingly difficult to care for a person all by yourself. Look into home care services, day programs or help from your family members. Know your limits and allow yourself some breaks and time away from your caregiving situation.
Ask for and accept support. Delegate some of your daily tasks when possible and include the people who would like to help into caregiving plans. Find someone you trust when you’re feeling low or need to talk about some of your feelings. Welcome your vulnerability. Get help when you are feeling stressed. And, remember, YOU ARE NOT ALONE.