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Category: Cargivers

Connect’Aide: virtual meetings but real connections

Launch of a new tablet lending service for caregivers

Let’s stay connected with Connect’Aide, a new electronic tablet lending service for caregivers of people living with Parkinson’s disease. It is the result of a collaboration between Parkinson Montréal-Laval, La Coop Ressource Informatique and La Puce Informatique. 8 caregivers from the Montreal area will benefit from the loan of a tablet and personalized support to participate in online activities offered by Parkinson Montreal-Laval. This free service is offered for 6 months and includes mobile data in cases where caregivers do not have access to an internet connection.

A complete service package

Thanks to the complementarity of the three partners involved, a complete service has been set up. Parkinson Montreal-Laval provides the electronic equipment (tablet, headset with integrated microphone) and is in charge of identifying and contacting the caregivers who could benefit from this service. La Coop Ressource Informatique is responsible for the initial configuration of all the tablets. Finally, La Puce Informatique offers personalized support in the use of technology throughout the month of June. This training will allow caregivers to learn how to use the tablet, to understand how to use electronic mail and to become familiar with the Zoom platform to participate in video conferences and with the Hangouts application to chat with relatives and friends by phone calls or text messages. The training will also allow them to integrate basic notions of online security. Finally, virtual spaces will be made available to them so that they can ask all their questions.

And the good news is that there is still a place to benefit from this service. If you are, or if you know, a caregiver of a person living with Parkinson’s in the Montreal area, contact us: montreal-laval@parkinsonquebec.ca or 514-868-0597.

Connecting caregivers

With the health crisis, community organizations have had to adapt and change the way they operate. More globally, it is all of our social interactions that have been changed. Face-to-face meetings have gradually been replaced by virtual activities. If there is a lack of human contact, these new technologies have nonetheless made it possible to stay connected. However, when one does not have the necessary computer equipment and knowledge, it is not always easy to maintain social contacts in this sanitary context. Isolation is then a real danger. This is why the L’Appui pour les proches aidants de Montréal had the idea to support this beautiful project which aims to improve the digital inclusion of seniors.


Our partners

L’Appui pour les proches aidants was created in 2009 to help improve the quality of life of those providing care to older adults by facilitating their daily tasks and ensuring that they take full advantage of available resources.

The Coop Ressource Informatique is a social economy organization that aims to meet the computer needs of community organizations.

La Puce informatique is a social economy organization whose mission is to offer training in information technology to the population.

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Caregivers: don’t be isolated to better help

3 questions to Judith Gay, caregiver to her husband for 18 years

Did you know that? In the greater Montreal area, more than 10,000 people are living with Parkinson’s disease, but 40,000 people are affected if we count the caregivers. The role of caregiver is often a natural one, but it is also associated with many challenges.

In this Parkinson’s Awareness Month, we would like to acknowledge all those women and men who are committed to providing help and support to their loved one living with the disease. We met Judith Gay, who has been a caregiver to her husband for 18 years, and who shares with us an authentic and moving story.

And don’t forget, in April, you can make a difference by donating virtual tulips. It’s easy, just visit CanadaHelps.org and select the “Virtual Tulips” tab under “Assign your donation to one of the funds created by this organization”.

To begin, could you tell us how Parkinson’s disease affects your daily life?

Judith: Parkinson’s disease affects our lives in many ways. Our love life, our family life, our friends, our activities, our projects, nothing is spared. This change can be very small or very big. So the life of the person with Parkinson’s and our life becomes life with Parkinson’s, every day, every hour. The body and the mind are attacked. Nothing is the same as it was before and we don’t know what the future will bring. We have to adapt.

What does it mean to you to be a caregiver?

Judith: being a caregiver says it all. It means helping our partner, our loved one, to maintain his or her autonomy, accompanying him or her through the changes, listening to him or her, planning ahead, always being informed, forgetting oneself, living through losses, successive little griefs, being angry, laughing, crying, worrying and, despite everything, hoping.

In April we #FlowerHope, what advice could you give to people who are affected by this disease?

Judith: after living with Parkinson’s disease for 18 years, I can see the ups and downs of my partner and myself. But I learned one thing, don’t isolate yourself, stop thinking that only you can help your partner. One day, I knew I needed help if I wanted to help him. With a dose of courage and humility, I made a call to Parkinson Montreal-Laval. My life changed, I was no longer alone.

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Photo Challenge – Beautiful pictures of solidarity

For International Parkinson’s Day, we launched a photo challenge on social networks!

How to participate? Post a photo of tulips on Facebook or Instagram with the hashtag #FlowerHope and tagging the Parkinson’s Montreal-Laval account. Photos can also be sent to communicationspml@parkinsonquebec.ca.

When? From April 11 to 30, 2021

On April 30, a winner will be chosen to receive a bouquet of tulips and his or her photo will be used in the 2022 campaign.

Take your pictures!

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Exclusive – Support Group for Caregivers (EN) open to all!

Save the date! Next Thursday, April 15, 2021, at 9:30 a.m. Marie-Pier Leclerc, a teacher and trainer who is passionate about well-being and mental and physical health, will be the special guest of the English support group.

To allow as many people as possible to share this moment with this sparkling personality and to exchange on key subjects such as confidence, understanding or stress management, this group will be exceptionally open to all.

This conference is about the art of setting our personal limits and will give us all tools to develop self esteem, confidence and benevolence.

Do not hesitate! Register at soutienpmllaval@parkinsonquebec.ca or call 514 868 0597 ext. 523

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Training workshops for caregivers of people living with Parkinson’s disease

In May, Parkinson Montreal-Laval will offer caregivers a series of 4 training workshops, followed by a sharing session with a caregiver.

These workshops will allow caregivers to learn more about Parkinson’s disease, to develop new approaches to their role and to maintain their personal balance. By participating in these workshops, they will leave with new knowledge, strategies and a series of informative documents.

Held remotely (on zoom) in small groups of 8 to 10 participants, these workshops will take place every Wednesday in May (May 5, 12, 19 and 26) and the first Wednesday in June (June 2) from 10:30 am to 12 pm.

For any questions or to take part in the workshops, please contact Sophie Lecours by phone at 514 868-0597 #2 or by email at soutienpml@parkinsonquebec.ca


When? Every Wednesday in May (May 5, 12, 19 and 26) and the first Wednesday in June (June 2) from 10:30 am to 12:00 pm
Where? On Zoom

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Together, let’s flower hope with the donation of virtual tulips!

Buds blooming, positive temperatures and longer days, etc., if April usually announces the beginning of spring, it is also the month of Parkinson’s disease awareness. An opportunity to cultivate solidarity and to flower, together, hope through the donation of virtual tulips.

Tremors, muscular rigidity, slowness of movements, etc., some symptoms are known, but many aspects of this neurodegenerative disease remain unfortunately unknown. Indeed, behind this multi-faceted disease, there are also, and most importantly, people who have to deal with the disruption of their daily lives. In the Montreal-Laval region, no less than 10,000 people, and as many caregivers, live with the disease.

Together, let’s #FlowerHope with the donation of tulips

To continue to provide them with the services, advice and support they need, Parkinson’s Montreal-Laval is launching #FlowerHope, its virtual tulip donation campaign, on April 1. As was the case last year, due to the current sanitary context, this key campaign for all those affected is back with an adapted formula: from April 1 to 30, 2021, people are invited to donate virtual tulips on the CanadaHelps.org platform by choosing the “Virtual Tulips” tab.

Although the present period is complicated for everyone, it is particularly so for people living with Parkinson’s disease for whom isolation and lack of physical activity can have negative effects on the evolution of the disease. It is therefore essential to be able to maintain activities and continue to support them. So if you can, please donate virtual tulips so that together we can make hope bloom.

Flourishing activities

If the health crisis has somewhat modified the way of doing things, it has luckily not had any impact on the services offered. The month of April will therefore be an opportunity to continue to offer a variety of activities remotely.

In addition to this, Parkinson Montreal-Laval’s recurring activities include support groups, Practice Your Voice workshops, personalized follow-up, etc., as well as a new series of meditation workshops.

Inspiring stories

Throughout the year Parkinson Montreal-Laval has the privilege to meet, support, exchange and share with people living with the disease, caregivers, professionals… All these people are a real strength and a true source of inspiration. In this month of awareness, Parkinson Montreal-Laval wishes to honor them by publishing a story each week. To discover them, stay tuned! They will be available on our website and social networks:

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Recent diagnosis – Individualized meeting for diagnosed persons and their relatives

Have you just learned that Parkinson’s disease will now be part of your life?

Many questions running through your mind?

  • How to preserve your quality of life?
  • How to look to the future?
  • How to better face this disease?

And given all this, where to start?

It is perfectly normal to have questions and concerns. To support you as a person living with Parkinson’s disease or as a relative, Parkinson Montreal-Laval offers you a meeting during which you can get information on the disease and raise your questions, share your fears, then be comforted and advised. The objective is also to offer you resources that will help you deal with the disease on a daily basis.

For more information or to make an appointement, contact us by e-mail montreal-laval@parkinsonquebec.ca or by phone 514.868.0597.

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Let’s move! Benefit from our Respite and Exercise Service

We know that as a caregiver it is not always easy to free up time to participate in some of our activities. Difficult, indeed, to leave his or her loved one alone during this time. This is the reason why, we offer you the Respite and Exercise service with our partner NeuroMotrix. How does it work? When a caregiver participates in one of the activities offered by Parkinson Montreal-Laval (self-help group, conference, telephone follow-up, etc.), the loved one can benefit from a free home exercise session with one of NeuroMotrix’s kinesiologists.

Thought for the well-being of both the caregiver and his or her loved one, this service allows:

  • Caregivers to participate peacefully in our activities and benefit from the support and guidance they need;
  • Loved ones to practice physical exercise, an essential element in maintaining their autonomy and improving their quality of life. In fact, physical activity has many advantages for the treatment of Parkinson’s disease: improvement of muscle flexibility, coordination, balance, decreased fatigability, reduced stress and much more.

Do not hesitate! If you would like to benefit from this service or if you have any questions, you can contact Janie Guénette by email montreal-laval@parkinsonquebec.ca or by phone 514-868-0597, ext. 1.


About NeuroMotrix

NeuroMotrix is made up of a team of kinesiologists and scientific experts specialized in neurological disorders and the science of aging. Our expertise is adapted physical activity and our mission is to enhance the quality of life of people living with neurological disorders such as Parkinson’s disease.

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Stay connected: a new electronic tablet lending service

Are you caring for a loved one living with Parkinson’s disease and a member of Parkinson’s Montreal-Laval?

Would you like to benefit from our services and participate in our activities remotely?

Unfortunately, you do not have the necessary computer equipment for this…

Good news, Parkinson Montreal-Laval (PML) wants to facilitate access to its remote activities (by videoconference) by implementing a new electronic tablet lending service.

Intended for the use of Montreal caregivers who are members of PML, this service is:

  • Free;
  • Available on a medium to long term basis – several weeks/months;
  • Ready to use – new tablets already configured with the necessary basic applications;
  • Provided with customized training and technical support – by phone if required.

In return, the recipient commits to:

  • Have access to an internet connection;
  • Participate in any of the activities offered in videoconferencing (Zoom) by PML.

If you would like to benefit from this service or if you have any questions, please contact Sophie Lecours by phone at 514 868-0597 #2 or by email at soutienpml@parkinsonquebec.ca or Janie Guénette by phone at 514 868-0597 #1 or by email at montréal-laval@parkinsonquebec.ca.

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VIDÉO | Calling all caregivers!

A must see! This is a beautiful video that pays tribute to all the caregivers in the world. To help someone else you have to take care of yourself.

 

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